INTERNATIONAL MEETING ON VEIN OF GALEN ANEURYSMAL MALFORMATION IN NEWBORNS AND CHILDREN
Neonatal and pediatric neurocritical care is an evolving subspecialty that integrates neuroscience and critical care specialties. Rapid advances in knowledge and new perspectives require broad scientific collaborations and continuous update, especially in rare diseases.
Vein of Galen aneurysmal malformation (VGAM) is a rare congenital cerebral vascular malformation. In the past, the course of this pathology was burdened by serious complications, such as heart failure, cerebral haemorrhage, hydrocephalus, psychomotor retardation, and epilepsy.
In the most severe forms, the mortality in the neonatal period was equal to 100%. Currently, the diagnosis is still associated with high rates of morbidity and mortality, but the better understanding of the clinical, anatomical, and pathophysiological aspects of this pathology has
allowed to significantly improve survival and functional prognosis. In the last three decades, endovascular treatment and highly specialized management in neonatal and pediatric intensive care, together with a specific multidisciplinary approach have contributed to making
VGAM a potentially treatable disease. Few centers in the world deal with the management of patients with VGAM, from prenatal diagnosis to long-term follow-up, and the current literature does not provide sufficient data to fully define the different aspects of this complex condition.
The meeting is targeted to specialists in Neuroradiology, Interventional Neuroradiology, Neurosurgery, Neonatal and Pediatric Intensive Care, Cardiology, Neurology, Fetal Medicine, and Genetics.
The meeting is a broad collaborative project held by a multidisciplinary group with clinical and research expertise in VGAM treatment.
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